I am still out pushing the cause of open science and data sharing. Something we can do better through the scientific community. It starts with the will – and a focus on societal good. The ‘how’ is challenging – but the problems can be solved.
Earlier this week I gave a talk at an Institute of Medicine workshop on this topic. I told the group:
Let’s be clear about what is needed. We need to have studies published and summary results reported on clinicaltrials.gov – but that is not enough. We need to have individual patient-level data broadly available for investigators – not parsed out to selected individuals – but available broadly and freely.
I invite CardioExchange members to read the whole talk– don’t worry, it’s brief– and start a discussion here about this important subject.